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Multiple sclerosis thread
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Message 1.Â
Posted by Spud (U2255919) on Saturday, 6th June 2009
If you have MS, or if you know somebody who has it, or if you just want to talk about it, this thread is for you. Posts about other neurological conditions are also welcome...
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Message 2
Posted by notjenniferaldrich (U8555450) on Saturday, 6th June 2009
I have a good friend who has MS. Up to now, she has managed to keep herself going pretty well but tires easily when standing. We got her a seat-stick from the National Trust, and she loves it and ordered another for a fellow-sufferer. She is celebrating her birthday in July and retiring from work in the foreseeable future, so I hope she will be OK. She had a miserable divorce just before receiving her diagnosis, so life has been tough on her.
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Message 3
Posted by Spud (U2255919) on Saturday, 6th June 2009
Hi notjenniferaldrich, I'm glad your friend now has a seat-stick. My favourite one unfolds into a three-legged seat which is reasonably stable but when folded it makes a good solid walking stick. It's invaluable when out and about, and like your friend I've been buying them for other people too. I hope she'll be all right. It sounds like a lot of upset has happened in her life all within a short time, and stress is bad enough for anybody but it's especially dangerous for MS patients as it can trigger relapses.
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Message 4
Posted by bulekingfisher (U8365651) on Saturday, 6th June 2009
Hello Spud
About Multipule Sculoris MS you could try ouch@bbc.co.uk It is specialy for disabled people -
Message 5
Posted by Spud (U2255919) on Saturday, 6th June 2009
Thanks, I'll check it out at some point.
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Message 6
Posted by Spud (U2255919) on Sunday, 7th June 2009
I'm tackling a few MS-related tasks this weekend.
Reading the bumf from the MS Society which I've just joined, 7 years after my diagnosis with Relapsing and Remitting MS. It took a long time to be ready to join that Society but now I feel ready, and their magazine is excellent. Full of letters which make me say 'Yes! That's how it is for me, too!'
Cancelling my membership of the Ramblers' Association. I'm a serious hillwalker. Well, in my mind I still am one but my body no longer agrees. The Ramblers' magazine is entitled Walk and I really don't enjoy seeing that land on my doormat any more.
Making progress about my car. A few weeks ago it became clear that I can't drive an ordinary car any more and since then I haven't driven. The process of gathering info about what things I must do to have wheels again, and actually doing those things, is not the most enjoyable process I've ever been through. -
Message 7
Posted by Campbell-in-Clogs (U8123405) on Sunday, 7th June 2009
Ach Spud, someone was asking after you recently in the exercise thread as we hadn't heard from you for a while. Sorry to hear your walking isn't going so well any more. One of my best pals has MS. I've known her for about 10 years now and when I first knew her she could walk small distances but for the last few years she's been completely dependant on her wheelchair. Her condition seems to have been pretty stable for some time now but she has to be careful not to have 'silly wee accidents' that cause her a lot of hassle. She recently let a cup of hot tea fall on her legs and because she doesn't feel very much in her legs she 'didn't think it was that bad' and didn't do anything about it till the next day when quite bad blisters had formed which have taken a long time to heal.
I don't know if you've heard of the Dutch writer Karin Spaink? She has written lots about her MS, including one book with the title 'The Ear Mafia' raging against those who say that many sicknesses are 'between the ears'. I don't know if it's translated into English. I'll go and see if I can find out now... -
Message 8
Posted by Campbell-in-Clogs (U8123405) on Sunday, 7th June 2009
I've tried looking for more of her stuff in English but can't find any MS articles, maybe you're a better googler than I am though!
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Message 9
Posted by Spud (U2255919) on Sunday, 7th June 2009
Hi Campbell, it's good to 'see' you again and I hope you're well. Sorry to hear about your friend and I hope she's been able to find strategies that stop her MS flaring up. Yes, it's the silly wee accidents that are sometimes the worst, esp as they can look or sound so comical to other people, and explaining that it's actually not funny can be more effort than it's worth.
I haven't seen that book but it sounds interesting. -
Message 10
Posted by Campbell-in-Clogs (U8123405) on Sunday, 7th June 2009
well she doesn't really have any 'strategies'. She just gets on with her life as well as she can. For a while she had some sort of medication but that has been stopped now as it didn't really seem to be having any effect on her. She smokes and drinks more than is good for her, she doesn't particularly 'look after herself' very well at all really, but ach, that's just who she is. Funnily enough she's one of the cheeriest people I know. And no, I don't mean in that 'well, here I am bravely soldiering on' sort of way. She's just someone with whom I have a particular 'click'. We can laugh ridiculously at things. We sometimes don't see each other for ages and then just pick up where we left before as if we'd seen each other that morning. She absolutely does nOt do the 'I'm in a wheelchair and am therefore invisible/pitiable' thing either! She's /always/ making contact with absolute strangers, can strike up a conversation with anyone and everyone. Total opposite of me really!
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Message 11
Posted by Dunlurkin NL (U2675855) on Sunday, 7th June 2009
I have nothing particular to contribute, although I do know a number of people with MS and other, in some ways similar, disabilities.
CinC, I note that you refer to your friend as being 'dependent on her wheelchair'. From the rest of what you say, I imagine she considers herself a 'wheelchair user' rather tha 'wheelchair bound'. I feel that there is a big difference between the two terms, and the implied attitudes.
Dunlurkin -
Message 12
Posted by Spud (U2255919) on Sunday, 7th June 2009
An able-bodied friend of mine insists on using the term 'wheelchair jockey'. When I was able-bodied I thought it likely that disabled people wouldn't like that term and now that I'm in a position to judge, yep, I was right! Must get around to telling her.
It's funny (not in a good way) how people who use wheelchairs are sometimes talked about, rather than to. I'm thinking of the signs on my local buses, some of which say 'Please give up this space to a wheelchair user. User should position their wheelchair facing rearwards and apply the brakes.' On the newer buses the sign has been updated to '... Wheelchair should be facing rearwards with brakes on.' Apparently, to say 'Place your wheelchair...' as if wheelchair users could read and think, would be too terrifying for the signwriter! -
Message 13
Posted by Dunlurkin NL (U2675855) on Sunday, 7th June 2009
On that last point, Spud, I think the neutrality/passive voice is a shorthand term covering cases where the occupant of the wheelchair can do the positioning and where it is someone other than the occupant who is actually manoeuvring the chair. Seems a sensible solution to me.
Dunlurkin -
Message 14
Posted by David K (U2221642) on Sunday, 7th June 2009
Making progress about my car. A few weeks ago it became clear that I can't drive an ordinary car any more and since then I haven't driven. The process of gathering info about what things I must do to have wheels again, and actually doing those things, is not the most enjoyable process I've ever been through.Â
Hi, Spud! As I said recently on another thread, I don't usually share my personal stuff on the message boards. However, I recently reconsidered and now think that sometimes it can be useful to do just that.
I was diagnosed with MS in 2001, fortunately the condition is designated as benign, so hopefully won't get any worse.
Like you, I had to make some decisions about continuing to drive my car because of lameness in my right leg.
I contacted my local social services dept who put me in touch with the Driving Assessment Centre. As a result it was recommended that I drive a car with automatic transmission and an accelerator on the left.
Although it was difficult to get used to at first, I'm now (after 4 years) perfectly at ease with it. -
Message 15
Posted by Spud (U2255919) on Sunday, 7th June 2009
'Wheelchair should be facing...' is reasonable, although I'd prefer 'Place your wheelchair...' It's the older signs saying 'User should place their wheelchair...' that I find insulting. Reminiscent of the old stereotype, 'Does he take sugar?' without finding out whether the wheelchair user can speak. Anyway, the fact that the signs have been updated on my local buses makes me think somebody has pointed out the problem to the bus company.
Like many aspects of disability, in my experience, the little things matter.
In general I'm happy, in fact a little surprised, by how helpful people are since I became visibly disabled. Giving up seats, holding doors, making room for me to pass by. I liked the human race anyway but now I like people even more. -
Message 16
Posted by Spud (U2255919) on Sunday, 7th June 2009
Hi David
I'm glad you decided to mention some personal information on these boards. If anybody reading this thread prefers to be anonymous while writing about their MS I hope they'll decide to make themselves a new username (aka sock puppet), rather than not joining in.
Benign MS, well I wish you hadn't got it at all but I'm happy for you because at least you got the best of the 4 options. Long may it stay benign in your case. Mine is the next best option: Relapsing and Remitting. So at least I get remissions.
Thanks for the info about driving. Today I've done some reading and decided my local Mobility Centre should be my next port of call, so I'm planning to phone them tomorrow morning. -
Message 17
Posted by Spud (U2255919) on Tuesday, 9th June 2009
The Mobility Centre people were very helpful and they're sending me a form so that I can book an assessment, try out different adapations and listen to their advice. I wonder whether this was the same thing you had, DavidK? I haven't approached Social Services, though. Why did you do that?
Every person who get MS is one person too many but I do find that it's good to have a common disability rather than a rare one. My mother had a rare one and it took years of wrong treatments before she was diagnosed. In contrast I've been able to step into a fantastic system of NHS support and now I find that the Mobility Centre too is very clued-up. Apparently, they see a lot of MS patients. I hope I'll turn out to be a fairly standard case for them. -
Message 18
Posted by David K (U2221642) on Tuesday, 9th June 2009
Hi again, Spud.
It was my GP who directed me towards Social Services; they in turn put me in touch with The Driving Assessment Centre.
A meeting was arranged at my local hospital for a complete assessment of my condition, for which I was charged £80.
This meeting was attended by not only the person from the Driving Assessment Centre (who attended with an adapted car in which I had a trial run) but also a specialist MS nurse.
Incidentally, when I was diagnosed with MS in 2001, my Neurologist informed me that I have had the condition for the past 35 years without knowing it, which was a hopeful sign inasmuch as if there was to be any deterioration it would happen within in 10 years of the initial onset. -
Message 19
Posted by JennyDarling Long Gone (U250754) on Tuesday, 9th June 2009
My husband has MS - was diagnosed at the age of 21 and is now nearly 59. His is the Secondary Progressive sort, he never had relapsing and remitting. Over the years he has deteriorated but gradually. Now uses a power cchair indoors (the skirting boards all ruined!) and carries a manual wheelchair in his mobility adapted car (hand controls). He is very stubborn which is how he has got through life. Not always easy for me! He taught until he was 42, then took early retirement. Although he belongs to the MS society, he has had the most help and feelings of well being from our local MS Resource Centre, where he has physio on demand, and hyperbaric oxygen.
When I first knew him he didn't talk much about MS, but as the years have gone by, he has become quite an ambassador for therapy centres. He can still stand, just about, but the physio has helped his upper body so he can transfer from bed to chair etc.
The ambulance service here are brilliant. If he falls, they come and pick him up - very quickly. We do have loo problems, another bugbear. -
Message 20
Posted by Westsussexbird or Birdy aka Westie (U6316532) on Wednesday, 10th June 2009
Spud, I was thinking about you when I was in the bath yesterday and am really pleased to find you, albeit sorry to read of your difficulties and of course those of others posting in this thread.
I have had a little insight into the world of 'mind over matter not doing the trick' in that I have a duff knee at the moment and needed to be in a wheelchair to be confident of managing on a ferry to Ireland ... we've just returned from a camper holiday and I had to use crutches if I wanted to do more than just hobble around near the campervan! It is still playing up 6 weeks later, and it is one of the very rare times in my life that a condition hasn't just got better in, say, ten days. I can't walk the dog, bend down easily to weed or pick the strawberries, it's Wednesday and I would usually be going to a bird reserve with my telescope ... I can't do the things I love.
I was met with such kindness by the ferry company staff, and although I was managing on crutches on the journey home they instantly directed us to the elevator. People held open the loo doors for me and treated me like a star.
I wish my knee would get better though.
So, you peeps may not want it, but can I just doff my hat to you all please.
Westie :0)) -
Message 21
Posted by Spud (U2255919) on Wednesday, 10th June 2009
It's interesting that you had MS without knowing it, DavidK. I suspect that's true for me too as I've had weird little symptoms for years that now make more sense. I'm glad your prognosis is so good.
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Message 22
Posted by Spud (U2255919) on Wednesday, 10th June 2009
Hi JennyDarling and welcome. Loo problems, oh yes don't I just know about those! I've become more and more strict about my diet and it does help, but it seems so silly when an ordinary food can cause disaster.
It can't be easy being the partner of an MS patient. I often remark to my OH that this isn't quite what she signed up for. But it seems that 'in sickness and in health' is a promise worth making.
That's interesting about the MS Resource Centres. There's one near me but I haven't used it yet. -
Message 23
Posted by Spud (U2255919) on Wednesday, 10th June 2009
Hi Westie it's lovely to 'see' you again. Of course you are welcome on this thread. I'm sorry to read about your knee, though, and hope it's something that will respond to treatment.
Yes isn't it wonderful how complete strangers help when you have a visible disability. When it's a professional person (hotel staff etc) sometimes I can almost see the Disability Awareness training kick in, and I'm so pleased about that and always give positive comments when the chance arises. But in some ways what I find really heartening is when it's The Youth Of Today who are keen to help. I work at a university and I love students' attitudes. The ones with weird hair and rebellious clothing especially: they've all been so well brought up! -
Message 24
Posted by David K (U2221642) on Wednesday, 10th June 2009
It's interesting that you had MS without knowing it, DavidK. I suspect that's true for me too as I've had weird little symptoms for years that now make more sense. I'm glad your prognosis is so good.Â
Spud, it went something like this: In 1968 I was admitted into a nearby eye hospital with loss of vision in my right eye. The diagnosis was inflammation of the optic nerve which was treated with intramuscular injections of a drug called ACTH (superseded later with steroids). I'm pleased to say that my vision was fully restored and I was discharged 10 days later.
When my neurologist diagnosed MS in 2001, she said that this is when MS initially started…. But hey! I went through all through my working completely oblivious to the fact.
In the circumstances, I count my self as extremely lucky. Living by myself, I do all my own (to a very high standard, some say) cooking, cleaning, washing, ironing and shopping, without /any/ help from anyone. In addition I also maintain quite a large garden. -
Message 25
Posted by Westsussexbird or Birdy aka Westie (U6316532) on Wednesday, 10th June 2009
Yes, a beautiful weed free garden if photos on the Potting Shed thread are anything to go by :0))
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Message 26
Posted by David K (U2221642) on Wednesday, 10th June 2009
Yes, a beautiful weed free garden if photos on the Potting Shed thread are anything to go by :0))Â
xxx -
Message 27
Posted by Spud (U2255919) on Wednesday, 10th June 2009
Optic neuritis was one of my early symptoms, too, and it recurs if I get over-tired. The first time it happened to me was iirc 2001 and the eye doctor said 'It might be a stand-alone episode or it might be MS. If it's MS your next symptom will probably be numb fingers and toes.' I'd already had a numb-toe episode but I didn't really start to believe I had MS until the optic neuritis recurred and then a few months after that, my fingers and toes went numb. Then the formal process of diagnosis began, via MRI scan and lumbar puncture.
I think the difference in how our optic neuritis symptoms were interpreted at the time might be due to mine happening 33 years later than yours.
I'm so glad you can do normal things and especially gardening. I'm a gardener too and occasionally visit the Potting Shed thread. -
Message 28
Posted by notjenniferaldrich (U8555450) on Wednesday, 10th June 2009
Hello, everyone. I'm what you might call a seagull on this thread (seagull: flies in, makes a lot of noise, carps over everything and flies out again). Not a fellow sufferer, therefore of little use to anyone, but a sympathetic lurker mainly due to my dear friend, who is a sufferer and had a particularly hard time early on in her MS history.
I just wanted to say how I admire you all for the way you cope. And I also loved David K's garden and his super information in the potting shed. I didn't even know he had a "condition", so even more well done you. And thanks to Spud for appreciating a partner's role - my own OH has a chronic condition, and it isn't always easy to be the one who hasn't!
So all power to your elbows and to everyone else's who can use it to help. -
Message 29
Posted by JennyDarling Long Gone (U250754) on Wednesday, 10th June 2009
Spud, if you can, go along and see what your MS Therapy centre can offer you. Ours also offers art classes, which Him Indoors and I go to, what a laugh! (Does MS make you refuse to listen to the tutor's instructions, I wonder!!!!)
My OH self catheterises, which he has done for over 12 years now, takes cranberry tablets daily and has no infections needing antibiotics. Needless to say, I do a hell of a lot of washing, even with pads and bed protectors etc. I knew he had MS when I married him 25 years ago. I was au fait with disability as my dad was disabled with a similar complaint. However, now coping with him and an elderly mum 88 with increasing memory problems, I am not always coping and my stress level has increased 100%.
Still mustn't grumble! Keep smiling Spud! -
Message 30
Posted by Spartacus (U2261983) on Wednesday, 10th June 2009
I have MS,which incidentally, also started with an eye problem.I was 30 and had 6 children,so I decided I didn't want it and was not going to have it..doesn't quite work like that does it?
I tend not to post stuff about it,because I mainly use ML to mess around in when I am unable to tackle other stuff,but shall keep an eye on this thread for future reference.
I am currently in the process of another round of GCSEs,last one tomorrow-my 77th(I gained another child along the way)and I am have my eldest daughters's wedding to arrange,so I shall probably be around a whole lot more.... -
Message 31
Posted by Spud (U2255919) on Wednesday, 10th June 2009
You are most welcome on this thread notjenniferaldrich and you don't resemble a seagull in any way! Your ML name does resemble NOTJennyDarling's, though.
I'm glad you and your OH are finding ways to keep on track. Mine points out that at age 62, retired from a lifetime in farming, she has one or two complaints of her own even if they don't have the 'horror factor' of a title like MS. Anyway none of us knows what the future may hold. -
Message 32
Posted by Spud (U2255919) on Wednesday, 10th June 2009
Feel free to grumble on this thread if you wish, NOTJenniferAldrich. I'll be doing that myself when the mood takes me.
Meanwhile, thanks for info about MS Centres. I'm in the process of adjusting my view of myself from somebody who can say 'MS? Fick that!' and walk the Yorkshire 3 Peaks, to somebody who never leaves the house without a stick and who can no longer drive an ordinary car. Starting this thread is part of that process. Later, when I feel ready, it's good to know I'll have th option of using the MS Centre. -
Message 33
Posted by Spud (U2255919) on Wednesday, 10th June 2009
Hello and welcome, wombatsnose. I hope your MS isn't progressing fast. I too have found that refusing to have MS doesn't entirely work. But I do find that a positive attitude, and a willingness to do what's necessary, can help. Stuff like not drinking alcohol unless I'm feeling at my strongest. I like booze but I like my legs more.
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Message 34
Posted by David K (U2221642) on Wednesday, 10th June 2009
JennyDarling and wombatsnose, I’m in awe of you both...you make me feel like a fraud!
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Message 35
Posted by Spartacus (U2261983) on Wednesday, 10th June 2009
No awe required,here,David,I can assure you that I can complain about this wretched condition til hell freezes over,but none of us can do anything about it.Doesn't matter what sort of MS you have,it is still MS and can be a real pain in the back,in my case,you are affected just the same as the rest of us.We all cope in our own ways,and I live in hope that,one day,someone will find a cure,in the meantime,we all just get on with it as best we can...oh, and come on here for a therapeutic whingette...because there will be people that understand.
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Message 36
Posted by Marmalade Drizzle (U2239190) on Thursday, 11th June 2009
Hi Folks
I wonder if you guys could advise me. One of my best friends has just been diagnosed with MS. I'm trying to be supportive and effective so...
What would you have liked your friends and family to have done in the early diagnosis days.
marms -
Message 37
Posted by Spud (U2255919) on Thursday, 11th June 2009
Listen to your friend and let her/him decide how to handle this. We're all different so I can't speak for her/him. I can tell you that I appreciate people giving simple, matter-of-fact help when I need it: stuff like picking up my walking stick when I drop it, and not looking as though they think it's going to bite them. I appreciate people responding in a natural way with remarks like 'That's cr.p for you! How annoying!'
I don't appreciate people harrassing me about whichever 'cure' they've read about, especially not the one that 'cured' somebody they know: people who 'get better' from MS are generally people who happen to have the Relapsing and Remitting form of the disease. I don't appreciate wisecracks about my loo visits or my inability to do things that I used to love doing. I don't appreciate cries of 'Be careful!' when I stumble or drop things.
Perhaps you'd like to invite your friend to join this thread? But if s/he isn't ready to seek out other MS patients, fair enough, s/he doesn't have to. -
Message 38
Posted by Nimby (U10681114) on Thursday, 11th June 2009
Fer goodness sake......
I've had MS for 28 years but am still fightin'!
In winter months I tend to seize up but in warmer months I cope far better. I, like many,suffer with clonus in my right leg.........the only way I can describe it is to compare having your leg encased in plaster.......bloomin' heavy and I can trip over completely flat surfaces with ease!
I have learnt to walk at a slower pace and consciously lift my foot to avoid tripping - a true art!
A positive attitude is essential - the day I was diagosed was the day that Jacqueline du Pres died of the wretched condition.......
Yer cor tek it lyin' dahn....... -
Message 39
Posted by patriarchou (U11317033) on Friday, 12th June 2009
Yo'm a good un Nimby!
I have a different neurological problem, plus osteoporosis. Numb Legs make falling easy. And you know what falls mean.
Who shouted prizes?
Well I suppose plaster casts and the attention of the nice doctors in the Fracture clinic could be seen in that light
It has been hard to cope with the drastic change in life which the past few months have imposed - but I try each day to claw back a fraction more mobility. Fighting the fear in my head is probably the toughest battle of the lot.
Happily, my sense of humour remains intact whilst all around the rest of me slowly crumbles.
Good luck to you all.
And Nimby... ow bin yer today aer kid? -
Message 40
Posted by Nimby (U10681114) on Friday, 12th June 2009
Ter gorra laff ay yer P......?
Ad a bostin' day ta .....gooin' aht on the town later -
Message 41
Posted by Spud (U2255919) on Saturday, 13th June 2009
Hello Nimby and Patriachou, and welcome to the thread. Legs in plaster that isn't really there, yes I have that too, but didn't know it was called clonus. You learn something every day. It's hard to explain to people who haven't had it. Tripping over flat surfaces and feeling very frightened, yes I have those too. No actual fractures but some serious bruising. And isn't it *tiring* when you have to think consciously 'lift toes, place heel, adjust weight' at every bluddy step.
Being diagnosed on the day Jacqueline du Pre died, now that really was tactless. I'm glad you have a sense of humour. -
Message 42
Posted by Spud (U2255919) on Saturday, 13th June 2009
Please may I have a little Mustard hand-holding? I've got the form for my Driving Assessment and I'm proud of myself for filling it in, despite thoughts of 'oh no, has my life really come to this?' Compared to lots of people I'm in good shape, but I *so* preferred being able-bodied.
Anyway I suppose MS isn't a competition so I just want to whinge about how much I don't want to be filling in this form. I particularly don't want to do what I'm about to do now, which is to dig out the documentation around my driving licence, and to pull up the DVLA website to find out how I go about informing them of my MS having got worse. Don't like this! Don't want to be needing to do it! -
Message 43
Posted by Westsussexbird or Birdy aka Westie (U6316532) on Saturday, 13th June 2009
... and you have lots of cyber friends who wish you didn't need to fill in the fffing form.
:0/ -
Message 44
Posted by patriarchou (U11317033) on Saturday, 13th June 2009
Spud, I was feeling in a very similar way recently when I had to fill in the DLA form.
Cyber Hugs -
Message 45
Posted by Westsussexbird or Birdy aka Westie (U6316532) on Saturday, 13th June 2009
Shall we have a group hug :0))))
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Message 46
Posted by Spud (U2255919) on Saturday, 13th June 2009
Thanks you two. Your kindness is much appreciated and patriachou, I'm sorry that you've been through this as it's something I wouldn't wish on anybody.
Right. I've downloaded and printed out the DVLA form. I've found all the paperwork about my driving licence, including the stuff where I first told DVLA I had MS. It's 9.30 on a Saturday night and I think this doesn't actually have to be finished tonight. I'm leaving all the paperwork on my desk and now I'm going to make a nice cup of tea and calm down before bed. Promising to tell you when I get on with the forms. -
Message 47
Posted by Westsussexbird or Birdy aka Westie (U6316532) on Saturday, 13th June 2009
:0)
OH has just had to fill in some form for the government and it really brings home the predicament you are in doesn't it.
He was asked to explain what makes his condition worse ..... he said something along the lines of filling in this form is having a detrimental effect on me and will upset me for a week or so afterwards, and I have been dreading filling it in and have been stressing about it for about two months, and putting off filling it in until it is long overdue.
Dreadful forms.
Mega sympathy Spud. -
Message 48
Posted by David K (U2221642) on Saturday, 13th June 2009
I've recently filled in and submitted my own application to the DVLA (which is several forms incidentally)....of course your licence has to be reapplied for every three years once they have been notified that you have MS.
They ask ‘when was your condition first diagnosed day/month/year?’ Well I know it was 2001; the day and month I have no idea. So I have to get in touch with my neurologist’s secretary (they don't accept blank spaces) for the info.
When did you last visit your doctor with this condition? I don't know!...another call to my GP's secretary!
I wonder why they can't simply ask if there been any deterioration in you condition since you last applied for a licence....in my own case there hasn't! -
Message 49
Posted by Westsussexbird or Birdy aka Westie (U6316532) on Saturday, 13th June 2009
Hello David :0))
We always scan forms once filled in so we can rehash what we said before. -
Message 50
Posted by JennyDarling Long Gone (U250754) on Saturday, 13th June 2009
Hugs, Spud.
My OH is stubborn which means sometimes life is not easy for me either! I am not exactly athletic or fit, going through a bad patch myself and he has no sympathy. I don't put this down to MS particularly but his family aren't warm cuddly people either.
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