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Posted by JennyDarling Long Gone (U250754) on Friday, 2nd October 2009
Anyone know somebody who is on this drug for dementia? Has it worked with them, and how quickly?
A relative is on the second month and now on 10 mg. For the first month I asked them every night what the tablet was for, no idea, then a breakthrough - we do now know why we are taking it!
Pity there isn't a drug to cure the delusions. (No, there's no-one upstairs, you live in a bungalow!)
, in reply to message 1.
Posted by JennyDarling Long Gone (U250754) on Saturday, 3rd October 2009
Bump
, in reply to message 1.
Posted by Kit Powlett Jones (U2673415) on Saturday, 3rd October 2009
Dear Jenny,
Yes my husband and I know two people taking Aricept. I just talked with OH and he said he would agree that what it really seems to do is slow down the progress of the disease, not to reverse any of the effects. That's just what we have observed and I'm not a doctor. So, really we don't know how much faster the disease would progress if they weren't taking the Aricept.
Best wishes,
Kit
, in reply to message 3.
Posted by politeLadyPortia (U7099336) on Sunday, 4th October 2009
The Alzheimer's Society may be able to fill you in more.Their Helpline is excellent
PLP
, in reply to message 4.
Posted by Westsussexbird or Birdy aka Westie (U6316532) on Sunday, 4th October 2009
, in reply to message 1.
Posted by Westsussexbird or Birdy aka Westie (U6316532) on Sunday, 4th October 2009
Jenny an aunt of OH's had dementia and for a long time found it helpful to have a large board (a wipe clean sort of board) propped up in an obvious place. Each day it would be altered ...
Today is Wednesday,
Jane is here in the house with me.
My name is Flossie
Hairdresser 11 a..m.
Lunch Liver and bacon.
Deal or No Deal 4.45
Teatime
8pm David Attenborough Living World
Dinner fish
9pm Bedtime and warm bath
I think it helped to anchor the feeling of time passing.
Of course it is only helpful if it is helpful, but might help with the delusional aspect of things.
A difficult time for you all. :0)
I think that my mother died of an overdose of Aricept, about 2 weeks after being started on it, I think she hoarded them and then took them too many at once.
Are the carers going to give you the pills?
I don't need carers to give me pills!
We'll never know as the doctors wouldn't do an inquest.
Sorry, no use.
The antibiotic I took and which has wrecked my tendons, jouints, CNS, PNS, digestion, vascular sutem and more, also has a rating of 1.8. Cqn't drive, can only walk a few steps, can't see well, have vuiolent remors... I thought I was taking penicillin.
I cannot over-emphasise the importance of doing an in-depth search, then a deeper, then some more, before taking any drug with which you aren't very familiar.
, in reply to message 7.
Posted by Kit Powlett Jones (U2673415) on Sunday, 4th October 2009
Re: I think that my mother died of an overdose of Aricept
I'm sorry to hear that.
Re: Sorry, no use.
I wouldn't say that. Hording pills might be something to look out for if someone is depressed.
, in reply to message 9.
Posted by Kit Powlett Jones (U2673415) on Sunday, 4th October 2009
I meant that maybe my OH and I should check to see if the staff watches our peeps swallow their pills.
, in reply to message 10.
Posted by JennyDarling Long Gone (U250754) on Sunday, 4th October 2009
Thanks for all the very helpful info.
Mum has her morning pills in a dosette box and given to her by her carer. She isn't like Jack Woolley - not aggressive or difficult. I keep the Aricept with me, and give her the tablet in the evening.
I find the delusional thinking and false memories more upsetting to myself than her forgetfulness.
The whiteboard idea was also suggested by a care worker, so I might try that as she finds day to day remembering very hard.
, in reply to message 11.
Posted by Westsussexbird or Birdy aka Westie (U6316532) on Sunday, 4th October 2009
I hope the white board will prove helpful.
Her memories may well gradually go back back back until only those who shared her childhood will be able to know what she is talking about. My father in law went on about dinosaurs and laying their eggs and it turned out it was a poem/song he and his sisters sang when they were little. Before then he had been talking about the war and of course my mother in law was able to relive that with him.
I'm sorry.
Well, I don't know whether Aricept will help your mother, but I do tyhink you sjhould look at the Ask a Patient website. You can read the experiences and opinions of hundreds of people who have used the drug, then you can a)be on the lookout for anything untoward that has been the same for others b) make up your own mind.
99.999% of doctors mean well and are good at theri jobs, given what they know, but unfortunately they don't always know everything until it's too late. That's why there are so many tragedies such as thalidomide, Vioxx, the N.Y. postal workers and Cipro, Gulf War Syndrome, etc. All the prescribinbg doctors meant well - the dreadful fact is that we believe there are far more independent tests and checks and safeguards and openness than there really are.
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