Graeme Sounessā epic challenge to raise awareness for rare skin condition
The Scottish football legendās last challenge raised Ā£1.4m.
Football legend Graeme Souness is gearing up for another epic challenge to raise money and awareness for a rare and painful skin condition called epidermolysis bullosa (EB).
Last year, himself and a team from DEBRA UK swam the 30-mile stretch between Dover and Calais, completing it in just over 12 hours and raised over Ā£1.4 million.
This year heās doubling down and the team are planning to swim the Channel twice and then Graeme will join them to cycle the 85 mile journey from Dover to London.
Graeme got involved after meeting Isla Grist who suffers from a type of recessive dystrophic EB.
EB is genetic disorder which causes extreme fragility of the skin and internal mucous membranes, causing the skin to blister and tear.
Isla said thereās āno break from the pain or the itchā and it takes āabout five hoursā to change all of her bandages.
She has had 66 operations in total.
Graeme has since become the vice president of DEBRA UK also known as the Butterfly Skin Charity.
He said his path crossed with Islaās and theyāve become mates, even attending her surgeries with her.
āIām on the receiving end of her banter all the time. She gives it to me every opportunity.ā
āThis a fight thatās never-ending.
āIslaās fight is on a minute-by-minute, second-by-second, every minute of her waking time, she is in excruciating pain.ā
This clip is originally from 5 Live Breakfast on July 23rd 2024.
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